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Showing posts with label special interests. Show all posts
Showing posts with label special interests. Show all posts

20 November 2019

Poem: Octopedal Intellect



Artwork by Alexander Harvey @ShadyComet (used by permission)



tock tock ticking
round your clock
hand in hand
we writhe
tentacled
bespectacled
one eye open wide
find me
feed me
open heart three
prise to find
inside
technicolour skin
you swim
through oceans
befouled with pride
can we tap
octopedal intellect
breaking brilliance free
before the final
midnight stroke
from grottos where
you hide

24 July 2019

Review: The Rosie Effect


I've just devoured Graeme Simsion's second novel, The Rosie Effect, and I'm already hungry for the third part of the trilogy. I set out to read this quickly, as I was approximately one third of the way into Toni Morrison's Paradise when it came into the library for me and I didn't want to lose the thread of her masterpiece yet again, but I did not anticipate consuming it within 24 hours. Yes, I did other things, work, kids, household, in that time, but every spare second, and a few I probably shouldn't have spared, were spent completely engrossed in the continuing tale of Don Tillman. Simsion's writing is fast and fluid, and I find Don so relatable I don't need to ponder his thoughts or actions. Hence, whipping through the first two books in this series.

The new dimension of a baby on the way drew me even deeper into this book than The Rosie Project. The scrutiny of Don's suitability as father material raised some painful questions for me and caused me to reflect on my own journey into motherhood. Clearly, as a woman, I had the double-sided experience of being in Rosie's shoes as well, so reading this book provided an opportunity to explore two distinct forces within my own mind.

When I became pregnant with my first child, I had no idea I was autistic. I'd thought about it in passing as increasing numbers of friends posted things about it on social media, but the Ran Man stereotype was solidly cemented into my brain (just as in Don's), so I shrugged it off. While the female presentation of ASD was only just being codified by the DSM-5 around the time I was growing a baby, I apparently had enough "tells" to be picked out by some professionals. No one, however, had the decency to mention it to me.

The distain Don encounters from the social worker, Lydia, recalled an experience I had during my first antenatal appointment. I went blindly to see a random doctor, who I expected would instruct me on what I should/shouldn't do, as I was unaware of any of the protocols or procedures surrounding pregnancy at the time. Although I had become pregnant precisely when I intended to (four months after going off the pill, and a month after giving up coffee and alcohol, I deemed the safest minimum time at which to "pull the keeper"), was an appropriate age (34), finished with my PhD, gainfully employed on my second 3-year contract at a prestigious university, and married, I got the distinct feeling that the first doctor I saw thought I was tremendously unsuited for the task. I attempted to get the requisite information from her, but left angry and insulted after being spoken to like a child for half an hour. I took the pile of pamphlets home and ingested their guidance and recommendations along with half a round of unpasteurised sheep cheese, which I promptly put away when I read the warnings about listeria.

I can visualise that doctor's visit and the follow-up with painful clarity. I can hear her rising tone of irritation as I resolutely refused to have the amniotic fluid tested for markers of Down Syndrome, as my husband and I had weighed the risks of the procedure and were unprepared to terminate the birth on such grounds. I sensed she was angry with me about something else, but I had no idea what. I was healthy, fit, educating myself as rapidly as possible about all things pregnancy and baby related, committed to breast feeding, and making informed choices, what could she possibly be aggrieved of? 

It took seven years and this book for the penny to drop. If I were a betting person, I would put money on her judging me unfit because she saw my lack of eye contact, endlessly fidgeting and fluttering hands, "professorial" tone, sewed it up in one dismissive package and hoped I wouldn't bring "another one" into the world. It's certainly possible that I'm giving her more credit and a colder heart than she's due. Maybe she was just overworked and tired. Maybe she thought I was lying about my diet, exercise, non-use of drugs and alcohol, etc. because I couldn't look her in the eye when asked. Who knows? But the way she talked to me, like I was a child or an imbecile, rather than someone with exceptional brain power, makes it hard to draw a different conclusion.

I've heard many other autistics repeat this same refrain. The moment someone, particularly a (mental) health professional, either discovers our diagnosis or surmises it for themselves, we're summarily dismissed as too daft to understand what they're saying. Either that, or they dismiss the diagnosis, because we're clearly too "high functioning" to be autistic. A nasty Catch-22.

The Rosie Effect does great things to dispel so many of the myths surrounding autism. Don loves deeply, is a stalwart friend, is trusting and patient to a fault. The lengths he goes to in his attempts to protect, assist, and prop up the people around him are laudable. I was moved to waves of tears as his friends and family gave their heart-felt accounting of all he'd done for them. These are the stories of autists we need to tell.

This wouldn't be an honest review if I didn't include the things about this book that chafed. No great criticisms, but things that made me pause and suspend my belief. I find Don's best friend, Gene, continues to be far too two-dimensional. I recognise that this is normal through Don's lens, but even Gene's words and actions don't belie a full human rendering in this book. I keep waiting for him to be more completely revealed around every corner then feel disappointed when he's not.

I will also add one editorial comment. No American medical student would use the term "muso". That is an unabashedly Australian term, which had me scanning back through the pages to see if there was any indication that the study group contained other Aussies. It was also odd that Don used the term "crib" instead of "cot", even when speaking to his father, but I can see why the former would be selected for international audiences to avoid confusion.

Finally, I gave this an unreserved 5 stars on Goodreads and highly recommend it to anyone looking for a touching, fast-paced, insightful read.

29 October 2018

How Special is it?


I've been asked to write about my special interests outside of books. If they asked me, I could write a book about my love affair with books, but we already used up all our time talking about that and I'm sure I didn't say so many of the things I wanted to just about that topic before I was so abruptly redirected to a completely unrelated subject. I was not happy about this as I'm so rarely given free reign to discuss my special interests. Learning to close the tap before the deluge of ideas and thoughts about my subjects of interest spills out was one of the first lessons in masking I received those many years ago in the Philippines A lesson that's been reinforced many hundreds of times over in the intervening years: no one really wants to hear all you have to say on this subject, so just don't even get started.

Loving books isn't particularly unusual at any age. "Bookworm" is rather an endearing term and "bibliophile" hardly speaks of anything outlandish. Many people find comfort, solace, inspiration and adventure through books. Libraries and bookstores exist to foster this love of reading. So where does this morph into something "unusually intense"? I don't know. I think lots of people love the smell of books and the feeling of being surrounded by them. Do others experience unbridled joy when they walk into a library or bookstore? Am I unusual in my desire to read constantly? Is it "normal" to feel such affinity for the characters in books that their loss and triumphs are my own?

But I digress, I'm supposed to be talking about something other than books…

What I know was unusual was my intense passion for jazz that began when I was 12. Apart from my dad's Antonio Carlos Jobim record that I grew up with, I don't really know where I first heard jazz, but it was love from the first syncopated beat. I was resolute in my desire to play the tenor sax and poured myself into it from the first time it came out of the case. I’ll never forget the taste of the reed on my tongue and the incredible sound that resonated through my whole being the first time I blew through it.

It wasn't easy being a self-proclaimed jazz aficionado at the age of 13 (especially as most 13 year old girls wouldn't have the foggiest idea what 'aficionado' meant), particularly before the dawn of digital radio and social media. The majority of my peers, even those in the middle school jazz band, didn't share my intense passion for this art form and certainly weren't spending every free moment of the day practicing or listening to this incredible music. Our public radio station, which I could just manage to tune into from my bedroom, played jazz all day Saturday and segued into Blues Stage late that night. I would be glued to those speakers from dawn until I passed out late in the night, sucking up every note and riff.

My parents were tolerant and generally benignly neglectful on this front. As with the rest of my childhood, I was pretty well allowed to do whatever I wanted because I never caused any trouble. Who could argue with their kid for reading or practicing music all day? But it came to a bristling head when they insisted I must go to Honour's Camp at the end of 8th grade. For most of my classmates, this was an incredibly exciting experience that they worked hard to earn the right to attend for three years; for me it was a forced march out of my comfort zone that filled me with dread and anxiety. It also happened to fall on the weekend that the Army Corps Jazz Band was offering a workshop at the local high school. I pleaded with my parents not to make me go, giving this once-in-a-lifetime opportunity to study under the tutelage of some of the best jazz musicians in the country as my strongest argument. But they felt it best if I did things with kids my own age for once, thinking I would regret it if I missed out. Instead of bonding with my peers as I was supposed to, I was publicly humiliated the first evening then spent the rest of the weekend on my bunk (isolated from all the others in the cabin) listening to my walkman, which I had to hold up to the window to tune into my weekend jazz program. I still feel sick, 25 years after the fact, that I had to endure this torture and my parents were sorry too.

Fortunately, throughout most of my middle school and high school years, I was given access to groups of talented high school and college students who took me under their wings. I played with anyone anywhere any time I could. I would sit up all night listening to classic jazz recordings with well versed mentors, absorbing their worldly wisdom and internalising the brilliance of the masters they introduced me to. I had incredible talent, "chops" in the jazz vernacular, and was invited to play with professional bands.

I learned to sing jazz too and found I could easily emulate the styles of all the Great Ladies. Memorising lyrics and hearing all the parts of music is a life-long innate talent, so I took to vocals effortlessly. Singing was infinitely more portable than the tenor, so as life got more complicated, it came to the fore.

Not content just to listen to, sing and play jazz, I also needed to know all I could about the musicians behind the sounds. I read liner notes, biographies, magazine and newspaper articles. The Internet was only still in its infancy at this time, so there was no Dr. Google to feed my need to know, however I was thrilled that I could take a History of Jazz class at university and studied as hard for that, if not harder, than for calculus or chemistry (much to my detriment in those other classes, unfortunately).

In those years, I gravitated towards groups that shared this passion and chose my initial university on its reputation for excellence in science and music. I had ready access to my people and still maintain a few friendships forged from those two shared passions.

Sadly, I eventually had to accept that I was spreading myself too thin and focus my time and energy on science instead of jazz. This was a very difficult choice, one I foresaw coming from the very early years, but put off making until my hand was forced. My circumstances at my second university made it impossible to continue playing and listening to jazz regularly. Fortunately, there was a second revival for a few years whilst I was in grad school and dating a fellow Earth scientist who was also a talented pianist. Our shared passions for jazz, science, and the great outdoors allowed our relationship to flourish and was the cornerstone for our friendships with others. Sadly, again, the end of that relationship also marked the end of playing music for me. I still have my sax, and I would still love to play, but there is a great heaviness and despair that accompanies it. I know I can't put the time and energy into it that it would require to be great again, and so I ignore it completely. I hope that some day I can return to it, but for now it fills me with an intense sense of loss even to contemplate it.