In Part II of this series, I started my battle story in the middle with the arrival of my second child. As brutal, protracted, and dehumanising as that series of events was, it paled in comparison with the acute trauma of my first birth. When we think about having a baby, it's all teddy bears and nappies, smiling exhausted parents, bottles and boobies, not near-death experiences. I'd heard of PTSD prior to my first pregnancy, but it was something I mistakenly only associated with soldiers returning from the battle fields or perhaps police officers or firefighters, never ever "the happiest day of your life".
I was physically and mentally prepared to give birth. I knew instinctively what my body needed to do, I was not afraid of the pain; my highly experienced midwife had more faith in my ability to birth my baby than any of her previous clients. But things didn't exactly go to plan. We'll never know exactly why my body didn't quite do what it was supposed to, but it's quite likely that a bike accident a decade earlier disrupted the communication along my spine just enough that part of my cervix simply didn't get the message to let go and my big-brained baby got stuck.
I had zero desire to go to hospital, ever. I have a massive phobia of them. The noise, the lights, the intrusive people, the lack of privacy, the GERMS; it's a fucking nightmare. My homebirth was going beautifully until I exhaustedly agreed to have my waters broken after eight hours of full labour.
There's meconium. I no longer have any option but to go to hospital. More than six years later, I still feel the edges of the floorboards that I clung to, pleading not to be taken into the waiting ambulance, under my fingernails and bare body. I summon every ounce of resolve in my bull-headed self to keep my contractions going during the 25-minute ambulance ride to avoid an emergency Cesarian upon arrival in hell.
Four hours of battle later, with the aid of untold scores of midwives fighting along side me, I let out a tremendous roar (after being nearly silent for the preceding 12 hours) as the doctor unsheathes the scalpel and eject my daughter into the world unaided. The midwives are shocked to see a baby fly out that fast. It is over. She is placed on my belly and crawls to my breast. We lie there united at last. But the nightmare is just about to start…
After a few lovely moments, a couple of photos, a general reprieve, she is taken from me to be weighed and measured. I am stitched and stitched and stitched as well as the surgeon can muster before he mutters something about the rest he can't get to that will have to heal on its own… The happy congratulatory voices become hushed. Doctors sound concerned and new messages start zipping around the room. Something about her respiration, I can't understand, I'm cold, I know she is cold. "She'll be OK, we just need to monitor her resps… Do you want to get up and take a shower?" "Yeah, OK, that would be great…"
I get up, the room swims, there's a lot more blood under me than anyone anticipated. I reach out for the bed, a midwife catches me before I crash to the floor. Someone presses an alarm. The room seethes with strange faces. No one can find a pulse, a vein to pump fluids into, I'm poked full of holes in a futile exercise to find one that is not collapsed, "20 over 80" someone proclaims. My daughter is also slipping, she is plopped into an oxygen cot and my husband rushes manically back and forth between us but I tell him to stay with her because the terror in his eyes scares me too much. He goes to NICU and a steadfast midwife stares deeply into my pupils willing me to stay with her as I start to slip down a very easy slope. I am so incredibly cold. Nothing warms me. I am left completely alone.
I am supposed to be elated, but I am empty. My most precious little person is no longer inside of me and I can't even touch her anymore. I spend an hour listening to other women scream their heads off having short and highly medicated labours whilst I'm trapped alone not knowing where anyone is or how my baby is doing. I can't sleep.
When I can finally go to her, I can only just put my hand on her tiny relaxed body for a few moments. It's absolutely heartbreaking. I've been waiting to hold her in my arms and nuzzle that little neck for nine months and now I'm not even sure she knows I'm here. She has no needs now as the tubes have replaced me. I'm told to go get some sleep. But sleep doesn't come. I feel like I'm going crazy. After a few days they hesitantly discharge us because the doctor can see I'm too anxious in this place, but the midwife comes every day to check both of us. Less than 24 hours later we're re-admitted to emergency because my little one is fighting a lung infection. All focus is on her and no one worries about me.
Another week in hospital. I rage and scream when my roommate's visitors think it's cool to have a smoke prior to entering the maternity ward where I stew with my IV-antibiotic-fed newborn fighting for her life. I've earned massive cred with the midwives on this ward for what I fought through, so they quickly pull strings to get me a private room. I'm in pain, but trying to maintain a brave face. I'm still not sleeping, but neither is my baby, so it appears normal.
But the sleepless weeks turn into months. Even when someone else looks after her and tells me to sleep, I can't. I'm 100% on edge all the time. I cry nearly as much as she does. We travel a lot because it's so much easier to just keep moving.
One night, several months later, when she has finally started sleeping for at least a few hours at a time, my husband and I decide to watch a movie. It's a light-hearted comedy about four couples having babies. It's silly and ridiculous and we laugh a lot. Until suddenly, it's not. One of the mothers has a problem in labour and the doctors hit the Code Blue alarm. The same one I had. My smile instantly dissolves, my head spins, and I feel like I'm going to vomit. I try to get out of the room but collapse on the floor and feel like I'm dying. My whole body seizes up. I have no idea what's happening. I'm terrified. I'm heaving and sobbing. I can't make it stop. My husband holds me, lets me cry, is completely baffled with me; I have to get up to feed the baby.
Shortly thereafter I read an article in a breastfeeding magazine about the 1% of births that lead to PTSD. The description and explanation make everything click. I start to get some help and counselling. The regular counsellor is at a loss of what to do to help me so she sends me to someone who teaches me a tapping and eye tracking technique to use whenever I have a trigger. It works a treat, but doesn't stop the insomnia. I'm also severely depressed, but ardently refuse to fill the prescription for SSRIs the doctor implores me to take.
Looking back on my life, I know I've suffered multiple severe depressive episodes. I have contemplated suicide more times than I like to admit. Now, understanding myself through the lens of Autism, I see the patterns of sensory overload, people overload, new environments/experiences, anxiety, and insufficient time for my special interests that built up to each. Had I known then what I know now, I would have advocated for my own needs, removed the forks and conserved the spoons. I wouldn't have felt so ridiculous about my need for quieter spaces, fewer smells, a particular piece of fabric to rub.
Arriving on the scene wholly unprepared for parenthood unravels a lot of people. It is a triggering event for many ND women that suddenly sets them on a path toward self-awareness and/or diagnosis. But I crash landed into it with the triple threat of zero experience around children under 10, undiagnosed ASD, and PTSD. It has taken a long time, but I'm learning to forgive myself for being so completely fucked up those first two years of my daughter's life.
Learning to see depression and anxiety through a kinder, softer lens finds its corollary in the Black Dog Project. I came across this beautiful endeavour to break the stigma around adopting black dogs, who are perceived as more aggressive, as I was searching for images for this post. I love what they're doing and it reminds me to be kinder and more compassionate to myself when I'm fighting poor mental health.
Depression in all its forms is crushing. There is so much stigma, so many misconceptions, so little compassion that it takes a lot to even write anonymously about it. My mother once told my older brother I was being treated for depression, to which he scoffed, "what does she have to be unhappy about?" Depression is NOT about just being unhappy or dissatisfied (although those are some of the symptoms). For me, it comes from being out of my depth, pushing myself too hard, insomnia, isolation, sensory/people overwhelm, and the anxiety that ensues. I genuinely NEED time to self regulate, let my mind wander, control my environment, move, move, and move. When these needs are not met for whatever unfortunate combination of reasons, my mind goes into hyperdrive, it WILL NOT STOP. Yes, there are drugs that help, but they have unpleasant side effects and we still don't have any controlled long-term human studies to know if they're safe for continued use. I prefer to at least attempt to manage this brutal condition via non-chemical means because I do not want to be a living lab experiment.
There are so many people out there suffering in silence about their depression and anxiety. You can show you support them by brandishing a Black Dog logo or posting a sign in your office/shop/classroom. Dancing With the Black Dog is a registered charity.
